Windows on dementia

Alzheimers NZ

51 episodes listed below

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Dementia, heard through lived experience.

The gist

Windows on Dementia brings together people living with dementia, whānau, service workers, researchers, and advocates across Aotearoa. Its episodes turn personal stories into clearer understanding of care, diagnosis, stigma, support services, and the policy choices shaping everyday life.

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About Windows on dementia

Windows on Dementia is a New Zealand podcast about dementia as it is lived, supported, researched, and argued for in public systems. The show’s strongest episodes begin with people rather than policy. Corey talks about being a teenager whose dad has young onset dementia, and the conversation stays close to the emotional and practical adjustments that follow. Alistair Robertson speaks from lived experience, including diagnosis, stigma, family and community support, and new work that grew from his own journey. Rosie Chambers, Glenn Bradley, Renee Clark, Trudy Bridges, and others describe what local Alzheimer’s services look like on the ground. These are not abstract services. They include day programs, respite care, cognitive stimulation therapy, social groups, walking groups, referral pathways, and the reassurance of someone arriving when a family has just been told dementia is now part of their life. The show is also willing to talk about pressure. Several conversations return to underfunding, regional variation, remote access, and the gap between stated support for dementia care and the resources available to deliver it. That makes the podcast useful for families, but also for people who work in health, aged care, advocacy, or government. It explains systems in plain language. It also keeps the human stakes visible. Conversations with Catherine Hall and Tracey Martin place dementia care inside wider debates about aged care policy, reform, co-payment, emergency departments, and choices governments make about where care happens. A kōrero with Sir Richard Faull adds a research lens, tracing how donated human brain tissue and family histories helped deepen understanding of neurological disease. The pacing is measured and interview-led. The show gives guests time to find the point, then gently frames what it means for listeners. It is compassionate without becoming sentimental, and practical without sounding detached. Windows on Dementia works best for people who want to understand dementia through lived experience, local service reality, and the policy structures that shape care in Aotearoa.

Made for: For people living with dementia, whānau, carers, service workers, advocates, and policy-minded listeners in New Zealand. It also suits anyone trying to understand support options without losing the human context.

What sets it apart: The show connects intimate lived experience with service design, research, and aged care policy. It is local, practical, and unusually attentive to how dementia support changes by community, region, and family situation.

In their own words

People living with dementia are citizens whose lives matter. They have the same rights, needs and desires as everyone else, but are ignored far too often. It’s time their voices were heard. So join us and let's talk dementia.

As heard by us

Based on 4 episodes we listened to · September 2026

It makes dementia care concrete by connecting lived experience with service navigation and the systems that shape support.

Windows on dementia follows the practical consequences of dementia from a person's living room into New Zealand's research and policy institutions.

Read our full review in PlayNext →

Why you'd press play

A brain bank meets the front line, so your dementia questions leave the abstract.

Press play if you want

  • lived experience beside clinical and research perspectives, not tidied away behind them
  • a clearer sense of how needs assessments can translate concern into practical support
Read the full recommendation in PlayNext →
young onset dementiawhānau and caregivingneeds assessment and service coordinationlocal Alzheimer’s servicescommunity support fundingaged care policydementia stigmabrain research and donation

Talks about

Best episodes of Windows on dementia

Short reviews from the PlayNext desk, based on the episodes we processed.

Kōrero with Sir Richard FaullMar 8, 2026

A humane look at brain research shaped by families and donated brains.

This conversation traces a neuroscientist who moved from rat work into human brain research after families began asking him to examine donated brains and, later, to keep them for further study.

Needs AssessmentsFeb 15, 2026

A clear guide to how NASC works, and why referral details matter.

Windows on Dementia offers a practical look at NASC through Lanita Russell and Amy Pettigrew-Porter, showing how needs assessment and service coordination can connect people with support for showering, housework, medication supervision, and other everyday tasks.

A united front: Part twoNov 27, 2025

A careful policy discussion that keeps aged care tied to real-world pressure.

Windows on Dementia keeps its focus on Daniel Paul’s conversation with Catherine Hall and Tracey Martin, using the newly announced ministerial advisory group as a springboard into aged care policy.

Reality bitesMay 9, 2025

A plainspoken look at dementia that stays close to lived experience and front-line support.

Windows on Dementia offers a grounded look at how dementia is lived and explained, moving from Alistair Robertson's younger onset diagnosis in 2014 to Rosie Chambers' front-line view of support in South Canterbury.

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Episodes

  1. 1

    Dementia diagnosis – Part one

    Matthew Croucher says a dementia diagnosis can guide care and unlock funded services, even when a cure is unavailable.

    Aug 28, 2026·28m·1 clip
  2. 2

    Taking action

    Aug 9, 2026·28m
  3. 3

    End of an era

    Aug 7, 2026·21m
  4. 4

    Adult decision-making capacity

    Jul 15, 2026·47m
  5. 5

    Kōrero with Professor Cliff Abraham

    Hidden gem

    Professor Cliff Abram tells Catherine Hall how psychology at the University of Virginia led him to neuroscience, the University of Otago, and research on learning and memory.

    Jun 9, 2026·32m·2 clips
  6. 6

    Corey’s story

    A teenager shares his personal experience and poetry about his father's young onset dementia diagnosis and its impact on his family.

    Apr 7, 2026·13m
  7. 7

    Kōrero with Sir Richard Faull

    Hidden gem

    Catherine Hall of Alzheimer's New Zealand speaks with Sir Richard Faull on Windows on Dementia about brain research and dementia.

    Mar 8, 2026·33m·2 clips
  8. 8

    Needs Assessments

    Hidden gem

    Lanita Russell opens a practical conversation about needs assessment and service coordination, or NASC, with Amy Pettigrew-Porter.

    Feb 15, 2026·25m·2 clips
  9. 9

    A united front: Part one

    Tracey Martin says New Zealand’s aged-care system is under pressure from an ageing population, higher care needs, and a 1997 funding agreement.

    Nov 27, 2025·21m·1 clip
  10. 10

    A united front: Part two

    Hidden gem

    Daniel Paul opens the conversation with Catherine Hall and Tracey Martin.

    Nov 27, 2025·29m·2 clips
  11. 11

    Dementia support

    This episode features Alzheimer's New Zealand managers discussing dementia support services in their communities, including cognitive stimulation therapy, day programs, and respite care, in light of the upcoming World Alzheimer Report 2025 on dementia rehabilitation.

    Sep 7, 2025·28m
  12. 12

    Dementia Design

    Jul 15, 2025·22m
  13. 13

    Reality bites

    Hidden gem

    Amy Hicklund opens Windows on Dementia with a brief introduction.

    May 9, 2025·33m·2 clips
  14. 14

    Medication and more

    Apr 1, 2025·39m
  15. 15

    Reimagining education for the real world – Part two

    Jan 7, 2025·15m
  16. 16

    Digitial technology in education – Part four

    Jan 7, 2025·18m
  17. 17

    Education innovations – Part three

    Jan 7, 2025·16m
  18. 18

    Challenges facing education – Part one

    Jan 7, 2025·14m
  19. 19

    Breakthroughs and biomarkers

    Dec 2, 2024·56m
  20. 20

    At the coalface

    Nov 11, 2024·25m
  21. 21

    Tackling stigma around dementia

    Sep 8, 2024·35m
  22. 22

    Demystifying dementia

    Aug 12, 2024·34m
  23. 23

    Reflections on learning

    Jun 10, 2024·25m
  24. 24

    Hearing and dementia

    May 12, 2024·39m
  25. 25

    Action Plan: The way forward

    Mar 13, 2024·30m
  26. 26

    Dementia and the Chinese community

    Feb 6, 2024·21m
  27. 27

    Reducing the risk

    Dec 13, 2023·31m
  28. 28

    Understanding continence

    Nov 15, 2023·20m
  29. 29

    Let’s chat about… how doing, creates belonging

    Oct 1, 2023·15m
  30. 30

    Young Onset Dementia

    Sep 10, 2023·24m
  31. 31

    Let’s chat about… when I am lost for words

    Sep 6, 2023·16m
  32. 32

    Let’s chat about… 'I want to go home'

    Jul 12, 2023·11m
  33. 33

    Let’s chat about… Personhood

    Jul 12, 2023·16m
  34. 34

    Back to basics: Election 101

    Jun 22, 2023·23m
  35. 35

    Keeping your brain healthy

    Mar 8, 2023·21m
  36. 36

    What's happening on the ground?

    This episode discusses the underfunded state of community support services for dementia in New Zealand, featuring insights from Alzheimer's organization managers Rosie Chambers and Glenn Bradley.

    Feb 13, 2023·36m
  37. 37

    Where support starts

    Nov 15, 2022·11m
  38. 38

    Life after diagnosis

    This episode features caregivers Adrian and Tanya discussing their experiences supporting husbands with dementia, highlighting the urgent need for post-diagnostic support services.

    Oct 10, 2022·22m
  39. 39

    Looking to the future - Covid-19

    Apr 11, 2022·17m
  40. 40

    Cure and care

    Mar 28, 2022·24m
  41. 41

    Living with Covid-19 and dementia

    Mar 8, 2022·18m
  42. 42

    The growing impact of dementia mate wareware

    This episode discusses the growing impact of dementia in New Zealand, featuring researchers who contributed to the Dementia Economic Impact Report 2020, highlighting rising cases and disproportionate effects on Māori, Pasifika, and Asian populations.

    Dec 6, 2021·28m
  43. 43

    Dame Kerry Prendergast - Champion for Dementia

    Oct 3, 2021·12m
  44. 44

    Communication and dementia

    Sep 19, 2021·34m
  45. 45

    Dementia rights are human rights

    Jun 17, 2021·28m
  46. 46

    NZ's first Dementia Friendly museum - Te Manawa

    Mar 7, 2021·14m
  47. 47

    Dementia friendly design

    This episode discusses dementia-friendly design principles and their importance in supporting people with dementia to live fulfilling lives, featuring an interview with an architecture lecturer.

    Jan 25, 2021·24m
  48. 48

    Legal capacity and choice

    Oct 8, 2020·23m
  49. 49

    Mate wareware: Understanding ‘dementia’ from a Māori perspective

    Jul 14, 2020·16m
  50. 50

    Kate De Goldi - Champion for Dementia

    Jun 3, 2020·23m
  51. 51

    The Covid-19 challenge

    May 10, 2020·20m