If We Knew Then - Down Syndrome Podcast

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Down syndrome parenting with backbone and heart.

The gist

If We Knew Then is a grounded parenting and advocacy show centered on Liam’s life with Down syndrome. Episodes move between intimate family milestones and practical conversations about IEPs, pediatric care, speech development, transitions, appointments, and belonging.

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About If We Knew Then - Down Syndrome Podcast

If We Knew Then is a Down syndrome parenting and advocacy show shaped by lived experience rather than abstract advice. Its center of gravity is Liam: his 16th birthday, his move into high school, his accommodations, his friendships, his medical care, and the everyday work of being seen as a whole person. The show is intimate. It is also forceful. Episodes often begin with family detail, then widen into arguments about education, access, expectations, and the rights that should not have to be repeatedly defended. School is a major thread. The conversations return to IEPs, curriculum, transitions, annual meetings, and the exhausting gap between what is written down and what actually happens. The show does not treat accommodations as favors. It treats them as access. That clarity gives the series much of its urgency. At the same time, the hosts leave room for tenderness: bowling plans, classmates who show up, summer rest, pediatric visits, and the pride of watching Liam move through ordinary teenage milestones on his own path. Guests add practical depth. Beth Gibson discusses Buddy Up for Life and Buddy Up Tennis as a pathway for fitness, confidence, and inclusion. Dr. Ilona Kleiner speaks from the pediatric relationship, with attention to seeing Liam as Liam. Janine Tang brings a speech-therapy lens to communication, pressure, milestones, and the harm of writing off a child’s future too early. The show’s register is conversational and emotionally immediate, with a parent’s memory for small details and a parent’s refusal to accept diminished expectations. It suits families who need both language and stamina. It also suits educators, clinicians, and community members willing to hear how policies feel when they land on a child and family. The recurring message is simple but demanding: belonging is not sentimental, and rights only matter when people honor them.

Made for: For parents, caregivers, educators, therapists, and medical providers connected to Down syndrome, especially those navigating school systems, care teams, speech support, and transitions. It also serves listeners looking for concrete family experience behind the language of inclusion.

What sets it apart: The show pairs personal family moments with direct advocacy language, making rights, accommodations, and expectations feel immediate rather than theoretical. Its strength is the movement between tenderness for Liam’s ordinary life and a clear refusal to accept systems that lower the bar.

In their own words

We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn’t know very much about Down Syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.

Why you'd press play

Annual appointments become game day prep, with Stephen and Lori Sox in your corner.

Press play if you want

  • practical questions to bring into pediatrician, speech therapy, and school conversations
  • reassurance that advocating for your child need not mean carrying everyone else's opinions
Read the full recommendation in PlayNext →
Down syndrome parentingIEP accommodationsschool inclusionhigh school transitionsspeech developmentpediatric careannual appointmentscommunity sports programs

Talks about

Best episodes of If We Knew Then - Down Syndrome Podcast

Short reviews from the PlayNext desk, based on the episodes we processed.

193. Accommodations In An IEP Are A Right Not A FavorOct 18, 2025

A family's fight to make IEP accommodations real before an English test.

Accommodations in an IEP are treated as access, not favors, as Stephen and Lori Sox describe the gap between Liam's written supports and what actually happens at school.

192. Choosing A Pediatrician with Dr. Ilona KleinerSep 16, 2025

A warm discussion of pediatric care rooted in seeing Liam as a whole child.

Choosing a pediatrician becomes, here, a question of being known. Dr. Ilona Kleiner, Stephen Sox, and Lori Sox return to the same essential measure of care: whether Liam is seen as Liam, not reduced to a diagnosis or handled as an exception.

191. Play Dumb and Sabotage - Speech Pathologist Jeaneen TangSep 8, 2025

A grounded conversation about speech milestones, support, and the many ways children communicate.

Speech development sits at the heart of this candid conversation with Stephen and Lori Sox and speech therapist and author Janine Tang. They look at how difficult it can be for families to find speech support, why expressive language often carries so much pressure, and how…

190. Advocating Through The Challenges Of A New School YearAug 30, 2025

A candid, hard-won account of carrying inclusion into Liam's first week of high school.

Stephen and Lori Socks begin with Liam's first week of high school, then trace the long fight that made a meaningful education feel possible. Their story moves through an elementary school that repeatedly tried to push him out of the curriculum, the family's effort to keep him…

185. Disability Pride and Self-Worth with Vaish SarathyApr 27, 2025

A thoughtful conversation about disability pride, self-worth, and the assumptions families bring to daily life.

Disability pride sits at the center of this conversation as Stephen Sox and Lori Sox speak with Dr. Vaish Sarathy about Down syndrome, autism, self-worth, and the value placed on disabled people and children.

Podcasts like If We Knew Then - Down Syndrome Podcast

Episodes

  1. 1

    198. It's Liam's 16th Birthday!

    Hidden gem

    Liam's 16th birthday becomes a 16-year audit of how Stephen Socks and Lori Socks stopped measuring milestones against other families.

    Feb 19, 2026·1h 6m·4 clips
  2. 2

    197. An Update with Melissa Kynoch - Bertie's In School

    Stephen and Lori Socks welcome Melissa Kynoch back to discuss her son Bertie's journey with Down syndrome and the streaming of her BBC show on Prime.

    Feb 3, 2026·1h 9m
  3. 3

    196. Buddy Up For Life with Beth Gibson

    Hidden gem

    ["Beth Gibson says Buddy Up for Life started in 2008 after her three-and-a-half-year-old son Will, who has Down syndrome, wanted to play tennis with his older brother.", "She argues that children with Down syndrome should be expected to participate, earn their way, and learn the same rules that other kids learn in sports and school.", "The conversation moves through football, PE, cooking, finance, and volunteer training, showing how Buddy Up for Life turned one tennis lesson into a multi-program model.", "Stephen Sox and Lori Sox connect Beth's story to their own family experiences with Liam and to the wider problem of token inclusion."]

    Nov 26, 2025·1h 1m·4 clips
  4. 4

    195. Yellow Flower Gills Me Whole - Poetry By Sid Ghosh

    Hosts Stephen and Lori Sox interview Vaish and her son Sid, a poet with Down syndrome and autism, about his new poetry book and the power of communication.

    Nov 11, 2025·1h 2m
  5. 5

    194. That’s Not How It Happened: A Novel By Craig Thomas

    Stephen and Lori Socks interview Craig Thomas, co-creator of How I Met Your Mother, about his new novel That's Not How It Happened.

    Nov 3, 2025·1h
  6. 6

    193. Accommodations In An IEP Are A Right Not A Favor

    Hidden gem

    If We Knew Then episode 193 argues that Liam's IEP accommodations are 'a right, not a favor,' and Lori Sox keeps tying that line to IDEA, 504 plans, and legal compliance.

    Oct 18, 2025·35m·3 clips
  7. 7

    192. Choosing A Pediatrician with Dr. Ilona Kleiner

    Hidden gem

    On If We Knew Then - Down Syndrome Podcast, Stephen Sox and Lori Sox talk with Dr.

    Sep 16, 2025·58m·3 clips
  8. 8

    191. Play Dumb and Sabotage - Speech Pathologist Jeaneen Tang

    Hidden gem

    Janine Tang turns Play Dumb and Sabotage into a case for under-anticipating a child's needs so the child has a reason to communicate.

    Sep 8, 2025·1h 18m·5 clips
  9. 9

    190. Advocating Through The Challenges Of A New School Year

    Hidden gem

    Stephen and Lori Socks mark their son Liam's first week of high school after years of fighting to keep him on a full academic curriculum despite his elementary school repeatedly trying to remove him from it.

    Aug 30, 2025·48m·4 clips
  10. 10

    189. Let’s Talk About Transitions - Middle School to High School

    Lori and Stephen Sox reflect on their son Liam's transition from middle school toward high school, using a caterpillar's metamorphosis as their central metaphor.

    Aug 24, 2025·53m·4 clips
  11. 11

    188. Preparing for Annual Appointments

    Hidden gem

    Stephen and Lori Sox discuss the yearly stress of Liam's IEP meetings, evaluations, and medical appointments, framing preparation for them like an athlete preparing for game day.

    May 26, 2025·1h 10m·5 clips
  12. 12

    187. Happy Mother's Day!

    May 11, 2025·21m
  13. 13

    186. Life and Birth on Amazon Prime with Melissa Kynoch

    Hidden gem

    Stephen and Lori Sox interview Melissa Kynoch, a Birmingham, England mother whose pregnancy with her son Bertie, who has Down syndrome, was featured in the BBC documentary series Life and Birth.

    May 5, 2025·41m·3 clips
  14. 14

    185. Disability Pride and Self-Worth with Vaish Sarathy

    Hidden gem

    Stephen Sox, Lori Sox, and psychologist Dr.

    Apr 27, 2025·49m·4 clips
  15. 15

    184. The Adolescent Brain with Christina Aries - Part 2

    Apr 18, 2025·50m
  16. 16

    183. The Adolescent Brain with Christina Aries - Part 1

    Apr 3, 2025·51m
  17. 17

    182. World Down Syndrome Day - March 21, 2025

    Mar 21, 2025·40m
  18. 18

    181. Olivier and Hilda Bernier and Their IEP Experience

    Mar 3, 2025·38m
  19. 19

    180. Liam Turns 15: What Have We Learned In This Journey?

    Feb 25, 2025·56m
  20. 20

    179. Forget Me Not: Inclusion in the Classroom Documentary - Hilda & Olivier Bernier

    Feb 10, 2025·58m
  21. 21

    178. The 2025 DSDN Rockin' Dad Retreat with Ben Hughes

    Feb 3, 2025·52m
  22. 22

    177. Showing Up For The Challenges - Karen Maezen Miller

    Jan 27, 2025·1h 9m
  23. 23

    176. Revisiting 10,000 Maniacs Founding Member Steven Gustafson

    Jul 20, 2024·58m
  24. 24

    175. Communicating Our Stories with Sid and Vaish Sarathy

    Jun 17, 2024·1h 16m
  25. 25

    174. Advocating For Speech Therapy - Julie Picot

    Jun 10, 2024·48m
  26. 26

    173. The Endless Possibilities of People with Down Syndrome: Revisiting Jake Pratt

    May 27, 2024·1h 4m
  27. 27

    172. Happy Mothers Day: We Celebrate You

    May 12, 2024·25m
  28. 28

    171. Alzheimer’s Disease In People with Down Syndrome - Dr. Elizabeth Head

    Apr 29, 2024·45m
  29. 29

    170. Celebrating The Life of Carl Erskine with Ted Green

    Apr 21, 2024·1h 2m
  30. 30

    169. The Annual DSDN Retreats with Ben Hughes

    Apr 15, 2024·59m
  31. 31

    168. Liam's 14th Birthday: Sharing Some Insight

    Mar 8, 2024·1h 6m
  32. 32

    167. A Discussion About Using The R-Word with Lynette Louise

    Feb 26, 2024·59m
  33. 33

    166. Finding The Right Supports Without Shame - Julie Picot

    Feb 19, 2024·1h 4m
  34. 34

    165. Picking The Right Pediatrician with Dr. Ilona Kleiner

    Jan 29, 2024·58m
  35. 35

    164. Charlotte and Riley: Not Taking No For An Answer

    Jan 22, 2024·49m
  36. 36

    163. Revisiting Patience In The New Year with Maezen Miller

    Jan 15, 2024·56m
  37. 37

    162. Living In The Moment and Taking the Time to Reflect On Life

    Oct 23, 2023·8m
  38. 38

    161. Down Syndrome Awareness Month 2023: Bringing Awareness to Our Community’s Potential

    Oct 16, 2023·31m
  39. 39

    160. The Inclusive Hub: A Gym For People of All Abilities with Liam Starkey

    Oct 9, 2023·55m
  40. 40

    159. DSALA and DSC2U: Supporting Our Spanish-Speaking Community

    Oct 2, 2023·46m
  41. 41

    158. Best Buddies with Katelyn Quintero

    Interview with Katelyn Quintero about Best Buddies, an international organization promoting inclusion for people with disabilities.

    Sep 25, 2023·1h 6m
  42. 42

    157. Ruby’s Rainbow with Liz Plachta

    Liz Plachta discusses her organization Ruby's Rainbow, which provides scholarships for individuals with Down syndrome to pursue secondary education.

    Sep 18, 2023·1h 2m
  43. 43

    156. GiGi’s Playhouse with Nancy Gianni

    Nancy Gianni, founder of Gigi's Playhouse, discusses the importance of support networks for families of children with Down syndrome.

    Sep 11, 2023·1h 16m
  44. 44

    155. Using Your IEP to Make the Most of Middle School

    Sep 4, 2023·59m
  45. 45

    154. Revisiting Our Interview with Megyn Price

    Stephen and Lori Sox revisit an interview with actress Megyn Price, honoring her uncle Bill's legacy of love and impact.

    Aug 28, 2023·1h 12m
  46. 46

    153. Revisiting Jad Issa’s Story: A Man with Down Syndrome Raises a Family - An Interview with Sader Issa

    Aug 21, 2023·45m
  47. 47

    152. Revisiting The Canadian Down Syndrome Society’s Project Understood - Training Speech Recognition Technology

    Aug 14, 2023·58m
  48. 48

    151. The New York City Buddy Walk and Times Square Video with Abby Brandon-Livits and Misty Adams

    Abby Brandon-Levitz and Misty Adams discuss the New York City Buddy Walk and the Times Square video celebrating individuals with Down Syndrome.

    Aug 7, 2023·55m
  49. 49

    150. Down Syndrome Research, Ableism and The Right To Just Be with Dr. Eric Rubenstein

    Jul 31, 2023·1h 34m
  50. 50

    149. Down Syndrome and Alzheimer’s Research with Dr. Tom Mahan

    Jul 24, 2023·1h 27m