A family's fight to make IEP accommodations real before an English test.
Accommodations in an IEP are treated as access, not favors, as Stephen and Lori Sox describe the gap between Liam's written supports and what actually happens at school.

50 episodes listed below
Down syndrome parenting with backbone and heart.
If We Knew Then is a grounded parenting and advocacy show centered on Liam’s life with Down syndrome. Episodes move between intimate family milestones and practical conversations about IEPs, pediatric care, speech development, transitions, appointments, and belonging.
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If We Knew Then is a Down syndrome parenting and advocacy show shaped by lived experience rather than abstract advice. Its center of gravity is Liam: his 16th birthday, his move into high school, his accommodations, his friendships, his medical care, and the everyday work of being seen as a whole person. The show is intimate. It is also forceful. Episodes often begin with family detail, then widen into arguments about education, access, expectations, and the rights that should not have to be repeatedly defended. School is a major thread. The conversations return to IEPs, curriculum, transitions, annual meetings, and the exhausting gap between what is written down and what actually happens. The show does not treat accommodations as favors. It treats them as access. That clarity gives the series much of its urgency. At the same time, the hosts leave room for tenderness: bowling plans, classmates who show up, summer rest, pediatric visits, and the pride of watching Liam move through ordinary teenage milestones on his own path. Guests add practical depth. Beth Gibson discusses Buddy Up for Life and Buddy Up Tennis as a pathway for fitness, confidence, and inclusion. Dr. Ilona Kleiner speaks from the pediatric relationship, with attention to seeing Liam as Liam. Janine Tang brings a speech-therapy lens to communication, pressure, milestones, and the harm of writing off a child’s future too early. The show’s register is conversational and emotionally immediate, with a parent’s memory for small details and a parent’s refusal to accept diminished expectations. It suits families who need both language and stamina. It also suits educators, clinicians, and community members willing to hear how policies feel when they land on a child and family. The recurring message is simple but demanding: belonging is not sentimental, and rights only matter when people honor them.
Made for: For parents, caregivers, educators, therapists, and medical providers connected to Down syndrome, especially those navigating school systems, care teams, speech support, and transitions. It also serves listeners looking for concrete family experience behind the language of inclusion.
What sets it apart: The show pairs personal family moments with direct advocacy language, making rights, accommodations, and expectations feel immediate rather than theoretical. Its strength is the movement between tenderness for Liam’s ordinary life and a clear refusal to accept systems that lower the bar.
We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn’t know very much about Down Syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.
Annual appointments become game day prep, with Stephen and Lori Sox in your corner.
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Short reviews from the PlayNext desk, based on the episodes we processed.
A family's fight to make IEP accommodations real before an English test.
Accommodations in an IEP are treated as access, not favors, as Stephen and Lori Sox describe the gap between Liam's written supports and what actually happens at school.
A warm discussion of pediatric care rooted in seeing Liam as a whole child.
Choosing a pediatrician becomes, here, a question of being known. Dr. Ilona Kleiner, Stephen Sox, and Lori Sox return to the same essential measure of care: whether Liam is seen as Liam, not reduced to a diagnosis or handled as an exception.
A grounded conversation about speech milestones, support, and the many ways children communicate.
Speech development sits at the heart of this candid conversation with Stephen and Lori Sox and speech therapist and author Janine Tang. They look at how difficult it can be for families to find speech support, why expressive language often carries so much pressure, and how…
A candid, hard-won account of carrying inclusion into Liam's first week of high school.
Stephen and Lori Socks begin with Liam's first week of high school, then trace the long fight that made a meaningful education feel possible. Their story moves through an elementary school that repeatedly tried to push him out of the curriculum, the family's effort to keep him…
A thoughtful conversation about disability pride, self-worth, and the assumptions families bring to daily life.
Disability pride sits at the center of this conversation as Stephen Sox and Lori Sox speak with Dr. Vaish Sarathy about Down syndrome, autism, self-worth, and the value placed on disabled people and children.

Patient conversations about communication, care, and courage.

Careful conversations for disability family life.

Disability news with lived-in clarity.

Assistive tech, disability advocacy, and a cowbell.
Business advice with a community-service backbone.
Disability arts, access, and care in conversation.
Liam's 16th birthday becomes a 16-year audit of how Stephen Socks and Lori Socks stopped measuring milestones against other families.
Stephen and Lori Socks welcome Melissa Kynoch back to discuss her son Bertie's journey with Down syndrome and the streaming of her BBC show on Prime.
["Beth Gibson says Buddy Up for Life started in 2008 after her three-and-a-half-year-old son Will, who has Down syndrome, wanted to play tennis with his older brother.", "She argues that children with Down syndrome should be expected to participate, earn their way, and learn the same rules that other kids learn in sports and school.", "The conversation moves through football, PE, cooking, finance, and volunteer training, showing how Buddy Up for Life turned one tennis lesson into a multi-program model.", "Stephen Sox and Lori Sox connect Beth's story to their own family experiences with Liam and to the wider problem of token inclusion."]
Hosts Stephen and Lori Sox interview Vaish and her son Sid, a poet with Down syndrome and autism, about his new poetry book and the power of communication.
Stephen and Lori Socks interview Craig Thomas, co-creator of How I Met Your Mother, about his new novel That's Not How It Happened.
If We Knew Then episode 193 argues that Liam's IEP accommodations are 'a right, not a favor,' and Lori Sox keeps tying that line to IDEA, 504 plans, and legal compliance.
On If We Knew Then - Down Syndrome Podcast, Stephen Sox and Lori Sox talk with Dr.
Janine Tang turns Play Dumb and Sabotage into a case for under-anticipating a child's needs so the child has a reason to communicate.
Stephen and Lori Socks mark their son Liam's first week of high school after years of fighting to keep him on a full academic curriculum despite his elementary school repeatedly trying to remove him from it.
Lori and Stephen Sox reflect on their son Liam's transition from middle school toward high school, using a caterpillar's metamorphosis as their central metaphor.
Stephen and Lori Sox discuss the yearly stress of Liam's IEP meetings, evaluations, and medical appointments, framing preparation for them like an athlete preparing for game day.
Stephen and Lori Sox interview Melissa Kynoch, a Birmingham, England mother whose pregnancy with her son Bertie, who has Down syndrome, was featured in the BBC documentary series Life and Birth.
Stephen Sox, Lori Sox, and psychologist Dr.
Interview with Katelyn Quintero about Best Buddies, an international organization promoting inclusion for people with disabilities.
Liz Plachta discusses her organization Ruby's Rainbow, which provides scholarships for individuals with Down syndrome to pursue secondary education.
Nancy Gianni, founder of Gigi's Playhouse, discusses the importance of support networks for families of children with Down syndrome.
Stephen and Lori Sox revisit an interview with actress Megyn Price, honoring her uncle Bill's legacy of love and impact.
Abby Brandon-Levitz and Misty Adams discuss the New York City Buddy Walk and the Times Square video celebrating individuals with Down Syndrome.