Coffee With Caregivers

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In their own words

Join Jess Ronne, author, speaker, and caregiver advocate as she chats with caregivers about the joys and trials of raising a child with disabilities. Jess is also the founder of The Lucas Project, a non-profit which provides recognition & resources for special needs families & associate director of the Unseen film. She & her husband Ryan live in Michigan with their 8 children, including their disabled son Lucas. Her story of beauty from ashes is detailed in her four books. To follow the ongoing saga she can be found at www.jessplusthemess.com

Why you'd press play

Jess Ronne separates mothering from daily care for her adult son; you may need that distinction.

Press play if you want

  • to hear a parent talk plainly about handing daily care to an agency without handing over motherhood
  • to sit with parents who can love their children fully and still grieve the life they expected
Read the full recommendation in PlayNext →

Talks about

Best episodes of Coffee With Caregivers

Short reviews from the PlayNext desk, based on the episodes we processed.

Not What I Expected: Navigating Grief, Hope, and Autism With Ashley JonesMar 21, 2026

A candid episode about grieving an imagined future while loving a child fully in the present.

Ashley Jones gives grief a careful place in family life, describing the ache of letting go of the future she once pictured for her son while continuing to love him fully as he is.

Amy Julia Becker - Honesty, Humility, and Hope: A Path to Wholeness for CaregiversMar 8, 2026

Amy Julia Becker connects caregiving, distraction, and faith through honesty, humility, and hope.

Amy Julia Becker treats caregiving as both daily work and inner formation, paying close attention to the habits that make care harder: distraction, control, and the urge to dodge discomfort.

Tyler Hudson: Hope and Advocacy - Living With the Challenges of Profound AutismJan 5, 2026

A grounded conversation about lifelong care, public support, and advocacy for autistic adults.

Tyler Hudson's conversation about raising Lyric, his 18-year-old son with profound autism, centers on the hard turn from school-age planning to adulthood.

Jillian Benfield: In Utero Diagnosis & Changing the Way We Think About Disability.Dec 23, 2025

A candid conversation about disability, sibling guilt, and the identities families build around unexpected change.

Jillian Benfield's conversation with Coffee with Caregivers looks at how an unexpected diagnosis can alter a family's sense of identity. A former news anchor and reporter, Benfield reflects on life as a military spouse and mother of three, including Anderson, who has Down…

Kelley Coleman: Permission to Advocate for Ourselves as Caregivers & Dealing with Shame from Other FamiliesOct 11, 2025

A candid, grounded conversation about caregiving, shame, and a mother's right to stay fully herself.

Kelly's conversation about caregiving centers on a hard, familiar question: why parents can battle fiercely for their children yet hesitate to advocate for themselves, their marriages, and their other children.

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Episodes

  1. 1

    Not What I Expected: Navigating Grief, Hope, and Autism With Ashley Jones

    Hidden gem

    On Coffee with Caregivers, Ashley Jones tells Jess Ronnie the family was in a strange position of hoping Gordon's evaluation would confirm autism because insurance needed the label to cover therapy.

    Mar 21, 2026·35m·3 clips
  2. 2

    Amy Julia Becker - Honesty, Humility, and Hope: A Path to Wholeness for Caregivers

    Hidden gem

    ["Amy Julia Becker says her daughter Penny, 20, has Down syndrome, still lives at home, and changed how she thinks about independence and interdependence.", "She links To Be Made Well to Mark chapter 5, where a woman has been bleeding for 12 years and a synagogue leader's 12-year-old daughter is dying.", "Becker says distraction keeps people from reaching the bottom of pain, and she uses 'honesty, humility and hope' as a healing spiral.", "She also describes lower-back pain, a yoga teacher's line about being 'out of line' in life, and the community tools she recommends for overwhelmed caregivers."]

    Mar 8, 2026·35m·2 clips
  3. 3

    Tyler Hudson: Hope and Advocacy - Living With the Challenges of Profound Autism

    Hidden gem

    ["Coffee With Caregivers speaks with Tyler Hudson, a Texas-born musician now in Australia, about raising his son Lyric, who has profound autism and is mostly nonverbal at 17.", "Tyler describes Lyric's echolalia, elopement, toilet-training struggles, and a rural Victoria search where police found him after he crossed a log over a river.", "He also talks through school changes in Victoria and Tasmania, NDIS support, risperidone and SSRIs for anxiety and OCD, and the move toward adult care planning.", "The conversation turns to his book Social Adjuvant, his vaccine-causation questions, and the caregiving future he is building for Lyric and his daughters."]

    Jan 5, 2026·39m·2 clips
  4. 4

    Jillian Benfield: In Utero Diagnosis & Changing the Way We Think About Disability.

    Hidden gem

    Jillian Benfield says her son Anderson was diagnosed in utero after a 22-week ultrasound and a later call that led to a 99.9 percent Down syndrome result.

    Dec 23, 2025·34m·2 clips
  5. 5

    Crystal Polk: Adoption, Time Saving Tips, and Support

    Oct 11, 2025·32m
  6. 6

    Eileen Lamb: Severe Autism, The Price of Advocacy, and Sharing our Stories

    Host Jess Ronne interviews Eileen Lam, an autistic mother of children with autism, about her caregiving journey and advocacy work.

    Oct 11, 2025·27m
  7. 7

    Alice Foran: Trailblazing for her daughter and the community for 39 years.

    Oct 11, 2025·32m
  8. 8

    Jason Hague: Spellers, Faith, and Surrender

    Jess Ronne interviews Jason, a father and pastor, about raising his son Jack who has non-speaking autism, focusing on the teenage years and the upcoming transition to adulthood.

    Oct 11, 2025·33m
  9. 9

    Debbie Weiss: Lifelong Caregiving, Grieving, and Overcoming Obstacles

    Jess Ronne interviews Debbie about her lifelong caregiving journey for her disabled father and autistic son.

    Oct 11, 2025·35m
  10. 10

    Kelley Coleman: Permission to Advocate for Ourselves as Caregivers & Dealing with Shame from Other Families

    Hidden gem

    Kelly Coleman says caregiving is a full-time job separate from motherhood, and she has built her book around that distinction.

    Oct 11, 2025·43m·3 clips
  11. 11

    Kari Baker: A Mom's Mission to Build K.I.N.D. Families

    Aug 29, 2025·27m
  12. 12

    Navigating Special Needs Parenting: An Inspiring Journey with Russ Ewell

    Jess Ronne interviews Russ, a father of two sons with disabilities, about his journey as a caregiver and advocate for special needs families.

    Aug 11, 2025·22m
  13. 13

    Kelli Stuart - Author, Parent Caregiver, and Cancer Survivor.

    Nov 13, 2024·41m
  14. 14

    Crystal Paine: adoption through foster care, time saving hacks, and family team work.

    Oct 16, 2024·37m
  15. 15

    Lyn VanTol : Parent Caregiver & Advocate for College Inclusive Experiences.

    Feb 7, 2024·43m
  16. 16

    Michelle Crawford - solo caregiving, survival mode, and feeling trapped.

    Dec 11, 2023·33m
  17. 17

    Jessica Patay: Special Needs, Community, and Making A Difference

    Nov 15, 2023·38m
  18. 18

    Crystal Morrison: Using Science to Create Solutions for Disability, Trauma, and Invisible Needs.

    Sep 23, 2023·27m
  19. 19

    Brandi Hurtubise: CMV Mama, Divide & Conquer, and Finding Purpose in Caregiving

    Sep 11, 2023·30m
  20. 20

    Tonya Andrews : Sleep Deprivation, Playing the Med Game, & Why We Must Address the Caregiver Crisis.

    Feb 6, 2023·41m
  21. 21

    Kassandra Lambert - advocate for predictable time off, restorative self care & fundraising for needs

    Jan 5, 2023·28m
  22. 22

    Ron Sandison - Author, Autism, & Advocate.

    Dec 9, 2022·33m
  23. 23

    Mary Barbera - ABA, Preparing for the Future, & Turning Autism Around

    Jess Ronne interviews Mary Barbera about her journey as a mother of a son with autism, discussing early signs and challenges.

    Oct 20, 2022·41m
  24. 24

    Amy McCoy - autism advocate, children’s book author, & how laughter is the best medicine.

    Sep 22, 2022·33m
  25. 25

    Melanie Oates: Single parent, long term respite, and choosing caregiving over a career.

    Aug 4, 2022·33m
  26. 26

    Vance and Kristy Goforth: When Autism Is Severe

    Jun 15, 2022·47m
  27. 27

    Kate Swenson - Blogger at Finding Cooper’s Voice & Author of Forever Boy

    Apr 11, 2022·32m
  28. 28

    Callie Daruk: Extreme medical needs after birth

    Oct 8, 2020·34m