Vive! Castilla y León con Iván Álvarez 13.00 10-04-26 | Día Mundial del Parkinson. Proyecto +Ruraltea. Cartelera

·1 hr·5 clips

Teresa Martín explains why Parkinson's is not just a disease of the elderly, with 15% of patients under 50.

1. Vive! Radio Burgos airs its afternoon programme 'La Una de la Tarde, El León,' hosted by Iván Álvarez, on Friday 10 April 2026, dedicated primarily to World Parkinson's Day and autism in rural Spain. 2. Hosts Iván Álvarez and Lucía Roales lead three main interviews: with Teresa Martín (FEPACIL, Federación de Parkinson de Castilla y León) and Sandra Pérez (psychologist, Autismo Burgos Medina de Pomar). 3. The episode's core purpose is awareness-building around two neurological conditions—Parkinson's disease and autism spectrum disorder—coinciding with World Parkinson's Day on 11 April and the start of the Más Ruraltea project's second phase. 4. Teresa Martín of FEPACIL explains that the 'No Soy Parkinson' national campaign aims to combat social barriers and stereotypes, and that FEPACIL's regional centrepiece is a tulip-planting ceremony across all Castilla y León provinces, with a school recycled-materials tulip competition in its fifth year. 5. Martín states that Parkinson's affects 1 in 100 people over 60 globally (over 6 million people) and over 160,000 in Spain, with 11 associations in Castilla y León serving approximately 2,400 people. 6. She challenges two dominant myths: that Parkinson's only affects the elderly (up to 15% of patients are under 50) and that tremor is the worst symptom (rigidity, dysphagia, cognitive disorders, and blood pressure problems are described as more incapacitating). 7. The disease mechanism involves dopamine-producing neurons failing as defective proteins accumulate in the brain; treatment currently replaces dopamine chemically using levodopa, administered orally and increasingly via pump delivery. 8. Deep brain stimulation (electrode implantation) has been available for years and can eliminate medication needs for many years post-operation; the newest technique, focused ultrasound (IFU), targets tremor with electromagnetic waves and is now being performed in Salamanca. 9. Martín says neurologist Lina Fasoro predicted a major advance in Parkinson's treatment before the pandemic interrupted research progress, and states she believes the field is now on the cusp of being able to slow disease progression rather than only manage symptoms. 10. She identifies a critical systemic gap: no real census of Parkinson's patients exists in Spain; the 160,000 figure is an estimate, and many patients are neither diagnosed nor treated. 11. The care-worker shortage is flagged as the most urgent structural problem: patients in advanced stages cannot remain at home and residential centres face the same staffing crisis, a problem Martín says will be 'much larger' in coming years given exponential patient growth. 12. Sandra Pérez describes Autismo Burgos's Medina de Pomar delegation, established 13 years ago with three users under age five, now serving 27 users including one in the Bebé Miradas early-detection programme. 13. Pérez's daily work includes individual therapy sessions targeting social skills, group sessions, supervised school playground time for younger children, and holiday-period group activities around events such as carnival and Christmas. 14. The Más Ruraltea project, led by Autismo España and co-financed by the EU and Fundación MAPFRE under the FSE social inclusion framework, runs from January 2026 to 31 December 2027 and involves 14 organisations including entities in Ávila, Valladolid, Zamora, and Burgos. 15. The project currently serves 332 people with autism spectrum disorder and their families, delivering individualised action plans (PAI) and conducting local awareness campaigns, including an April 2026 session with Medina de Pomar merchants on how to serve autistic customers. 16. Pérez explains that rural autism families face compounded disadvantage: 100-kilometre weekly therapy trips add financial cost, pre-journey preparation stress, and routine disruption—all of which are particularly harmful to individuals for whom strict routine is essential. 17. Host Iván Álvarez shares a personal account of a cousin with autism whose family moved from a quiet rural home to central Valladolid, immediately encountering traffic noise and sensory triggers that had been absent in the rural setting. 18. The interview segment with Teresa Martín is factual and measured, with clearly structured medical explanations; the autism segment with Sandra Pérez is conversational and empathetic, with hosts contributing personal experiences. 19. Listeners interested in neurodegenerative disease research, social care policy, or disability services in rural Spain will find detailed expert testimony in both segments. 20. Listeners seeking entertainment, current affairs, or national political commentary will find limited relevant content in the two main interview segments, though a brief regional politics update on the Castilla y León parliament is included at the programme's opening.

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