Advocacy Websites, and Getting Adam Back - A Mother's Triumph Over Epilepsy and Autism with Arlene Martell (ep.485)

·28 min·2 clips

A doctor told Jim Abrams they don't make money prescribing bacon and eggs for epilepsy.

Host James Martell introduces episode 485 of the Affiliate Buzz, focusing on advocacy websites. He mentions Arlene Martell's book 'Getting Adam Back, A Mother's Triumph Over Epilepsy and Autism' as a case study. Arlene recounts Adam's first seizure at age four and the family's struggle as his condition worsened with multiple ineffective drugs. She describes seeing a Dateline NBC segment on the ketogenic diet, a high-fat treatment for hard-to-treat epilepsy. The family demanded the diet at Children's Hospital, becoming the 12th child in BC to try it, and Adam became seizure-free within days. Arlene explains her motivation to build epilepsymoms.com and write the book to inform other parents. She mentions the website was created during a bootcamp as a guinea pig project. Arlene discusses starting a podcast, interviewing figures like Hollywood producer Jim Abrams and Dr. Swingle, a neuropsychologist. She shares statistics: 30% of children on the diet become seizure-free, 30% have major seizure reduction, and 30% drop out. Arlene talks about founding the Fraser Valley Epilepsy nonprofit, now the Center for Seizure and Epilepsy Education in BC. She describes the book's content, based on medical records and journals, and offers it free on her website. Arlene recounts confrontations with doctors, including one who said they don't make money prescribing the diet. James encourages listeners to build advocacy websites for their own stories. The episode concludes with resources like the Charlie Foundation and show notes at jamesmartell.com/AB485.

As heard by us

James and Arlene Martell connect her book, website and podcast to a practical discussion of building an advocacy project online.

James Martell talks with Arlene Martell about her book, Getting Adam Back: A Mother's Triumph Over Epilepsy and Autism, and the advocacy website and podcast built around it.

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Why you'd press play

You'll hear a family story reframed as a practical case for creating an advocacy website.

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